Neja tok blong ol pikinini – Cleft Palate And Cleft Lip Vanuatu
In Vanuatu, family do not know that they will have a baby born with cleft until birth, with every cleft unique.
There is no current support system available for health nurses and families which can mean the suffering and sometimes needless death of an infant. A friend of Kokorosa is designing a system for this in 2018 with input from current cleft family members and rural health nurses through collected stories over the past four years. Not only will this allow Ni-Vanuatu families to support each other post surgery, but will be the “go to” for instant advice, supplies, surgical referral procedures and emotional support. Available in English, Bislama and French.
April 2018 : Mammas with cleft children from all over Vanuatu are gathering in Port Vila and have now named their support group – Neja tok blong ol pikinini. With no exact known reason why children world wide are born with cleft they have named their own group neja tok (bislama = nature talk) as they feel nature had created their clefts in their children – it was no ones fault – just a design from nature. They are now designing a wish basket – what we can give to all health centres through out Vanuatu which would support a Mamma and her family who have a cleft baby born – practical things such as cleft bottles and also advice and support documents designed by those who know exactly what is wished for….
Mammas had the opportunity to spend time together in Port Vila staying at the Tafea Guest House organised by John Regenvanu (Ministry of Women’s Affairs) and generously paid for by Rotary 9910
Ni-Vanuatu beginning to run and organise their own support group, healing and empowering each other with cleft.